I call myself a mom* because it is too exhausting to think
about all of the titles that asterisk represents. I write about epilepsy,
orphan care, faith and pure exhaustion. I’m not willing to box myself into a
corner and commit to just one topic forever because there are lots of things I
want to speak out about.
When life was simple, we had a church and friends that we
thought would stick around through anything.
It turns out that life can get pretty lonely when your kid starts having
seizures. I don’t say that to shame the
people who bailed, I write about our journey to let other parents know that
they are not alone. I am still a Christian and we have a church we love now but
I am wary of religion. I’m also still
working on adjusting to life with a monster in our house.
I earned my master’s degree in Counseling Psychology from
Texas Woman’s University while learning how to parent a special needs child. Now I work as an adjunct psychology professor
at a local community college and I see clients at a non-profit counseling center. Someday I
am going to travel the world and make a difference for at least some portion of
humanity.
The Players in This
Story
As a foster mom I was not allowed to post pictures or names
or any information that could identify my children. So if you look back through
my posts, you may notice me using nicknames.
At this point, that sounds a little weird so most of the
time I call everyone by their first names. We do still refer to our youngest
two as “the litttles” around our house though. It helps us remember how lucky
we are to have them in our lives. So here are the players in this story:
Hubby / Curt :
we’ve been married for almost 12 years. He’s my best friend and my favorite
bald guy in the world. I don’t know how I would have survived this journey
without him.
Captain Bad Guy
Fighter (Captain for short) / Noah: For the record, he chose that moniker
himself when he was little. Noah is 9 and our only biological child. He is my
MMA fighter, incredibly smart at math and science and has a heart of gold.
Little Man / Bradley:
He is 4 now and was our first real foster child. We took in a few respite
(short term) kids first but he’s came to us as a 5 month old and never left. He
loves to cuddle with me and always has a smile. We adopted him almost 2 years
after he was placed with us. I recently described him as having the spunk of
1000 hyenas. That pretty much sums him up.
Little Miss / Alyssa:
Alyssa is 6 years old and the reason my house is covered in pink. She is
Bradley’s half-sister. When she came to us she was a scared and hurt 2 year old
that would scream for hours and was more than a year behind in her speech.
While we were waiting on her adoption to be finalized, Alyssa started having
seizures that wouldn’t stop. Several months after the adoption, she was
diagnosed with a rare and severe genetic disorder, PCDH19 Girl’s Clustering
Epilepsy. Her seizures are currently controlled though medication but this
diagnosis still impacts our family on a daily basis.
Me / Le: I guess
I should give a little bio on myself too. I’m in my 30’s and earned my master's
degree in counseling psychology this spring. I used to work with pregnant
teenagers but had to quit when Alyssa got sick. Now that she is more stable and
I am out of school, I am working as an adjunct psychology professor. I am often
sarcastic and random. My interests range from MMA (mixed martial arts) to
scrapbooking. I love to travel and secretly fantasize about selling everything
and roadschooling my kids.
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