Showing posts with label Christian. Show all posts
Showing posts with label Christian. Show all posts

Wednesday, December 30, 2015

High Heels in Church

   The day the social worker brought my daughter home, she was a filthy mess.  Her hair was matted and dirty.  She wore a stained, white crop top with a denim mini skirt.  She had on grungy, white heels that were so high I was surprised she could walk in them.  She looked like a mini hooker but she was two.  I looked at this tiny, broken child and my heart broke for her. The first thing I did with Alyssa was get her into a bubble bath and some clean clothes.  As a foster parent I had a closet stocked with various sizes of clothes I might need but I didn’t have any shoes that fit her.  The next day we went shopping for some age appropriate flats and she never wore heels again until the week before Christmas.

   Many parents think it is cute for little girls to play dress up in heels or wear the kind of clothes that an older teen might wear. For a typical child, there’s probably no harm in that.  I am personally not a fan of that kind of wardrobe for a little kid but I would never judge another family’s choice on the matter.  Alyssa has never been typical though.  She understood, even at that young age, that her value and beauty were intricately linked to her body.  She would prance around in a very adult way looking for reinforcement and would lift her shirt while asking if she was pretty. 
Initially I didn’t know how long Alyssa would be staying with me but I knew that I wanted to spend whatever time I had teaching her that her value is not defined by her body.  I bought her outfits that were modest but cute enough that people would stop to comment about how pretty she was.  I purposefully praised her when she made good choices or figured something out.  It was never about shaming the behaviors or dress from her previous life; it was all about expanding her definition of beauty to also include intelligence, compassion and perseverance. Even after the adoption we have continued working to instill those values.

   This year, on Small Business Saturday, I bought Alyssa a beautiful holiday dress from one of my favorite little shops.  She had a lead role in the church Christmas program as the person holding the letter N in Noel.  (Her performance was magical by the way.)  I really meant to find her some new shoes to go along with the dress since all of the ones I bought in August are too small now but the chaos of life won out.  That’s how I found myself frantically trying to find dress shoes at one of the two stores in our little town on the Saturday night before the show. Of course, since I was in a bind there was almost nothing in her size that wasn’t hot pink or just strange.  I finally found a pair of shiny black shoes with a bow on the toes.  The problem was that they were heals.

The heels.

   I stood in the aisle holding those little shoes and flashed back to the exploited little girl who came home to me four years ago. I tried them on Alyssa then took them off, disappointed that they fit. When my husband returned from his wandering, I showed the shoes him, expecting an equally distraught reaction.  I hoped that he would at least think that she was far too young to be prancing through the church in half inch heels.  Instead he questioned whether she would fall wearing them.  I explained what the shoes represented but they didn’t mean that to him.

   In the end, because there was literally no other option, we went home with the shoes.  I planned to leave early enough to stop someone in the city on our way to church the next morning for something, anything, else though.  Unfortunately, I am horrible at mornings and we barely got out of the house in time for the service. In front of God, my parents and the 100 other people in the congregation, my little girl stumbled to the stage wearing heels. 

My stars: Alyssa and Bradley holding the N and backwards E. 
   The performance was fantastic.  My kids were off beat but proud.  After the service, we had a church potluck where Alyssa eventually ditched the shoes because she couldn’t run 10 feet in them without toppling over.  In spite of the dreaded high heels, it was a really good day.

   It’s weird how sometimes the things we think represent everything evil end up being completely benign. Alyssa was no less innocent wearing heels than she would have been barefoot.  (If I wrote a political blog, I could expand that analogy to many other topics but we’ll stick to shoes for now.)  What happened to her was wrong.  The path that brought Alyssa to my door that day is one I wouldn’t wish on anyone. The shoes, as distasteful as they were, were only bad because I associated them with the people who put them on her.

That smile.

   It was easier when she was little and simply wore whatever I put her in.  I bought frilly dresses and she twirled.  I told her she was beautiful and she believed me.  I think that this is where the real work starts.  I can’t rely on simple rules, like only flat shoes and one piece swimsuits, to teach her to be the kind of lady I hope I’m raising.  We have to go farther and talk about the actual qualities that we are working towards and how we know if we have achieved them.  I want her to grow up believing that she is beautiful in both body and spirit, that she can be proud of her looks while not being defined by them.  I want her to feel free to express her personality through her style while understanding that clothes can only say so much. I want her to know that she was radiant on the stage that Sunday because her smile lit up the sanctuary, and the heels were just an accessory that I’m learning to live with.

Our family



In hindsight, I probably should have asked them to hold still
for a picture BEFORE they hit the dessert table.



Tuesday, May 12, 2015

I’m a special needs mom and I need you to hold my arms up.

   When I was a little girl, my mom and I would get up early most mornings to read the Bible together.  I always loved the stories in the Old Testament of battles and heroes and romance.  I pictured myself as Ester speaking for her people, Deborah leading the armies into battle or Rahab saving the spies.  In my daydreams I was the Biblical version of Wonder Woman, stepping up and saving the day when the men failed to get the job done.  These days I’m too tired to play warrior princess.  Since Alyssa got sick, there is another Old Testament story that has resonated with me though. 
Alyssa is 6 and has PCDH19 Epilepsy

   In Exodus 17, we read a story about a battle that the Israelites fought with Amalek.  In this particular battle the Israelites prevailed so long as Moses held up his hands but he grew tired as the battle raged.  As his weary arms started to sink, the enemy grew stronger.   Seeing this, Aaron and Hur found a rock for him to sit on.  Then they did something that changed the course of the battle.  They stood beside Moses and they held his arms up.

   Parenting in general is hard work but when a child has special needs it can start to feel like an impossible task.  There are so many appointments and emergencies and daily trials that it is enough to make your head spin.  Ironically, as the world implodes and we need help the most, many special needs parents find their support systems dwindling.  Some people choose to abandon us because our new lives don’t fit their sense of perfect.  Some shrink away in fear that our tragedy might wear off on them.  I honestly think though that most stand back because they don’t know what to do.  In the face of what seem like insurmountable obstacles, physical challenges and emotional devastation, they simply don’t believe that they have anything to offer.  That could not be farther from the truth.
Alyssa hanging out in the hospital in March 2013
    As I reflect back over the past two years, I remember many times when I felt like I was Moses, alone on a mountain, growing weary of the fight.  There were moments though, when people came beside me and helped me bear the load.  In small acts of kindness, friends and strangers came along and held our arms up.

It was the small town pharmacist who saw us adding yet another medication and took the time to ask if I’m ok.
It was my MMA instructor doing an entire class of just punching the bag because I was too raw for anything more.
It was the time at work when I broke down and every woman in my office stopped what she was doing to hold me while I sobbed.
It was random text messages from people saying that they were praying for me.
It was my mom sitting with Alyssa so that I could sleep for a few hours after being awake at the hospital for days.
It was our brand new babysitter being willing to keep Alyssa even on bad days so I didn’t have to quit school.
It was the other mothers in a Facebook group who understood the true intensity behind a simple post of “I hate epilepsy” and offered their virtual support from around the globe.
It was the friend who let me take off the mommy hat for a little while and talk about school or clients or some other gossip that helped to balance out my brain.
It was the people who gave my boys grace because they understood how hard it is to watch your sister fall apart.
It was the teacher’s aide who gently held Alyssa as she crossed the stage so she could still receive her pre-k awards last year after seizures left her disoriented and unstable.
Christmas 2014
   What I want you to notice is that few of the things I have listed are world changing actions but they were slivers of light in an otherwise dark time.  They cost their givers very little but meant the world to me.  There was no special skill or expertise required, only the willingness to stay when our life was anything but pretty and we were too depleted to give anything in return.

   The truth is that you usually don’t have to do anything extravagant to support the special needs parents in your world.  I don’t need you to fight my battle.  I don’t need you to have all the answers or the perfect plan to win the war.  I just need you to stand beside me sometimes and hold my arms up.

                                                                                  
My partner in crime.